When Spice realized that so many of our friends and family were caring for her and routing for her, (I read her fb/emails,) she wanted to send you a message to say thank you.
She says she is feeling fine, just kinda hyper and her eye hurts. She says the medicines are really nasty and taste horrible. And she thinks her face will be working again soon.
Bell’s palsy joys: So today I have been navigating the difficulty of a kid whose eye won’t close. She either has to have eye drops constantly, because she isn’t blinking, or have a gel in her eye. But the gel means she can’t see properly, and so she needs it taped shut. I made her an eye patch to go overtop of her taped shut gelled eye. But then she needs pills every couple of hours. I also had to sit in her classroom this morning, because she was so worried what her classmates would say about the eye patch. They were curious and fine, of course. but she was still really nervous. We took it off for lunch, and I came back after lunch and put it on again. I can do this for a day or tow, but what after that? Plus, the gel doesn’t last all day. So it has to be untapped, regeled and retaped. Her poor skin around her eye is already sore. Ug. Poor little one. I haven’t figured out how to do this yet.
We go see the paediatrician tomorrow morning about the Lyme disease. That is of course, the scarier stuff. I haven’t even bothered making an appointment for myself yet.
Honestly, I’m having a hard time not breaking into tears every time I talk about it, because I’m so worried about her… I know mostly Bell’s palsy goes away, but I really don’t want her beautiful face changed. It would be horrible to live with something that people would judge you by for the rest of your life. I mean, being a black transracial twin adoptee is enough attention.
My goodness, it’s been a week. Huge changes at Vulnerable Children (although that’s been in the making for a long time,) massive decisions to make about our adoption, massive decisions about our business … Huge health changes and challenges for me.
But all I can honestly really think about is my little Toters. (My nickname for Spice.)